UNDER CONSTUCTION AND RE-ARRANGING OF STUFF
RESEARCH FOR HEALTH NEEDS , DISABILITIES , MEDICAL INFORMATION , FINDING OUT ABOUT YOUR DIAGNOSIS , SUPPORT GROUPS , HOW TO FIND A DOCTOR ,HOSPITAL OR CLINIC, LEARNING DISABILITIES , HELPING YOUR DISABLED/EDUCATIONALLY CHALLENGED/MENTALLY IMPAIRED CHILD , BEING A DISABLED PARENT
Here is a useful feature that will help you find the hospital that treats your personal health problem in the best way possible. This is a medicaid/medicare postive site , so if you are on either program , this should be especially great for you !
Sometimes finding out how to help your own health situation means a dig into the past . Your family history of health can mean a big difference in the way you are treated for your health challenges.
Go here to build a family health tree so that you can know where to start with your own health:
VERY IMPORTANT FOR COMPARING MEDICINES AND FINDING OUT IF THEY CAUSE SERIOUS SIDE EFFECTS .
This is a medicine interation program . I found at least 3 of my meds have serious interactions and I am going to make an appointment with my doctor.
TOLL FREE NUMBERS FOR HEALTH RELATED ISSUES
GENERAL RESEARCH-health and disabilities
Start here if you are just beginning your research . These research links are from ' the best of the net ' type sources . I went to about 15-20 different sources and chose the sites recommended the most often.
Here is a HUGE !!! search page for health and disability research . I think this is the largest one that I have found ,and the most extensive , covering many different subjects.
If you are looking for a condition that is rare , or not well known , this is a good page for that too.
This is the site of the HARVARD MEDICAL SCHOOLS information page for consumers .
The site talks about mental health , but the SELF-HELP SOURCEBOOK has links to everything , not just mental health information.
Here you will find toll free numbers for self-help , financial help , disability help and many other outreach type numbers.
More toll free numbers for health and disability research :
The National Center for Complementary and Alternative Medicine (NCCAM) is the Federal Government's lead agency for scientific research on complementary and alternative medicine (CAM).
NCCAM areas of focus:
Advancing scientific research
We have funded more than 1,200 research projects at scientific institutions across the United States and around the world.
We provide timely and accurate information about CAM research in many ways, such as through our Web site, our information clearinghouse, fact sheets, Distinguished Lecture Series, continuing medical education programs, and publication databases.
Our research helps the public and health professionals understand which CAM therapies have been proven to be safe and effective.
N C C A R N.This site was created to help those who cannot find or access Medical Information on their Medical condition via Library or the Internet. Often this is because of an inability to afford the time it would take to do the researching, an inability to understand what they have read due to the complexity of medical terminology, or because of the time MDs do not take to explain a patient's condition in terms they can understand. We have on staff state of the art practicing physicians, as well as our nurses that will take the time to explain to you and try to help answer your questions.
"We Do The Searching For You"
MED-HELP.COM & MED-HELP.NET will take the time to look up medical information via patient's request and present it to the patient in a format that is as easy as possible to understand. MED-HELP.COM & MED-HELP. NET also provides a nurse or doctor to help explain the medical information to the patient. If we cannot find a specific information request, we will point them in the right direction to help them find it, and be there to help explain the information once it is found! MED-HELP.COM & MED-HELP. NET are a combined research guide and medical database whose function is to help patients find and understand medical information along with giving them the option of talking with a medical professional if needed. We presently have 4 nurses and 2 doctors along with thousands of medical links to almost any condition or disease. We also have hundreds of medical pictures and videos, as well as a medical library and state of the art teleconferencing equipment to help patients get their medical questions answered and their information needs met. MED-HELP.COM & MED-HELP. NET does not take the place, or intend to take the place of your doctors opinion. If an opinion is asked for, it will be given with extreme precision and with the most current information and experience available. All medical advice is medically correct and sound.
If you need to talk to someone with the same health concern as you , OR if you want to discuss your concerns with a medical professional , OR if you want to research a health concern , this is the place to go. The forums cover all sorts of general health topics.
This is a MEGA site for disabilty called DISABLED WORLD. It has articles , chat , forums , tons of links and support. Check it out ! ! !
TAKE A BREAK FROM SEARCHING AND GO TO THIS PAGE , FOR :
Disability and working
These pages were created and are maintained solely by Jim Lubin, who is a C2 quadriplegic, completely paralyzed from the neck down and dependent on a ventilator to breathe, using an keyboard/mouse emulator with a sip and puff switch to type morse codes.
I need to re-access what I think I can and cannot do. This man is an inspiration.
PARENTS WITH DISABILITIES
So many tell people with disabilities not to have kids , but this site shows that this advice is from those who are ignorant to the facts.
THROUGH THE LOOKING GLASS is a site which offers research, training, and services for families in which a child, parent or grandparent has a disability or medical issue.
This is another great link page for GENERAL DISABILITY RESEARCH
1,097 links !
Mostly for the parents to find ideas and processes to help their children succeed in education
Developmental delay site. This is very well laid out and easy to navigate.
"A nonprofit organization dedicated to meeting the needs of those working with children who have developmental delays in sensory motor, language, social, and emotional areas. DDR publicizes research into determining identifiable factors that would put a child at risk and maintains a registry, tracking possible trends. DDR also provides a network for parents and professionals and current information after the diagnosis to support children with special needs."
Here is the CHADD site.
It is the best site I have seen on the subject , and is an easy access site that is highly readable.
CHADD (Children and Adults with Attention-Deficit/Hyperactivity Disorder) is the nation's leading non-profit organization serving individuals with AD/HD and their families. .
This is a page with links for parents who have special needs kids.
This page is for Children with disablities ( and the people who love them !)
but a lot of information we could use too. The title of the site is a little misleading.
It is for disablities and other health subjects and has much more than just links for children :
This is something different ! a site that tells us ideas to just have FUN with our special needs and differently abled kids ! After all , they are KIDS ! ! ! AND kids like to :
This is the online version of EXCEPTIONAL PARENT MAGAZINE
" EP’s on-line resource. Continuing 35 award-winning years of providing
information, support, ideas, encouragement & outreach for parents
and families of children with disabilities, and the professionals
who work with them. "
This is the learning disabilities site. It is for you to use as a parent of a child with learning disabilties , as well as for your use if you have learning disabilities. The site seems fairly comprehensive. They have updated news about learning disabilites and there is a page for research.
"Learning Disabilities Association of America
If you are a parent or teacher of a child with a learning disability – or have learning disabilities yourself - you are not alone. Typical learning difficulties include dyslexia, dyscalculia, and dysgraphia – often complicated by associated disorders such as attention deficit/hyperactivity disorder.
The good news is that the Learning Disabilities Association of America is here to help.
Since 1963, LDA has provided support to people with learning disabilities, their parents, teachers and other professionals. At the national, state and local levels, LDA provides cutting edge information on learning disabilities, practical solutions, and a comprehensive network of resources. These services make the Learning Disabilities Association of America the leading resource for information on learning disabilities.
LDA believes that every person with learning disabilities can be successful at school, at work, in relationships, and in the community -- given the right opportunities. Join LDA in creating those opportunities."
This page is for disability information for infants through youth or young adulthood. Rather than having all the information on their site , they are kind of a hub for information . They direct you to places where you can get the specific help you need.They also have information for teachers and those who wish to access the needs of children. Being a dissemination site , the research area is substansive.
Welcome to NICHCY and a wealth of information on disabilities!
NICHCY stands for the National Dissemination Center for Children with Disabilities. We serve the nation as a central source of information on:
disabilities in infants, toddlers, children, and youth,
IDEA, which is the law authorizing special education,
No Child Left Behind (as it relates to children with disabilities), and
research-based information on effective educational practices.
Feel free to communicate with us in English or Spanish. We're here, we're listening, and it would be our pleasure to help you. In the meantime, we invite you to explore our Web site and make full use of all that we offer here.
Here is the National Organization for Rare Disorders.
This site has huge listings of organizational links as well as links for the disorders/diseases themselves(research and information about specific diseases ). They also have information about genetic counseling. They have their own medication assistance program . They have a networking program . Databases . Huge library of links. This is a wonderful site.
The National Organization for Rare Disorders (NORD), a 501(c)3 organization, is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.
What is A Rare Disorder?
A rare or "orphan" disease affects fewer than 200,000 people in the United States. There are more than 6,000 rare disorders that, taken together, affect approximately 25 million Americans. For almost twenty years, NORD has served as the primary non-governmental clearinghouse for information on rare disorders. NORD also provides referrals support groups and other sources of assistance.
Here is the
Disability Network News and Chatroom.
The chatroom seems to be the main reason for this site , but it does seem pretty active.
THIS IS A GREAT SOURCE OF DISABILITY LINKS :
Untangling the Web
Your complete listing of disability information on the Web
A quote from the site by friends of the author:
"Steven L. "Speed" Fullmer, Ed. D., age 48, died of cancer August 21, 1998. He was the founder of the award-winning Untangling the Web. As a Research Assistant Professor in the International Center for Disability Information at West Virginia University, he published scholarly research articles and book chapters. He was a world-class guitar musician. He is missed by his many friends and colleagues." Some web pages may not be available due to network traffic or may no longer be in operation.
All abilities- a huge resource with over 1,000 links.
A page that has links about disablities for people of all different abilities.
OK I just confused myself. Just check it out !
* * * * *
FOR THOSE WHO ARE NOT DISABLED
PLEASE READ THIS .
IF YOU HAVE A LOVED ONE WHO IS DISABLED , PLEASE READ. IF YOU NEED TO UNDERSTAND WHAT A DISABLED FRIEND IS GOING THROUGH , READ. ANYBODY WHO NEEDS TO KNOW MORE ABOUT BEING DISABLED , THIS IS A PLACE TO START.
Bits and pieces of useful information
This is something that I found while searching for my living on a low income page. There are many of us who use the computer while being bed ridden . My guess is that this is much cheaper than buying a table from a medical supply store.